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A Doctor Said These Horrific Words to the Young Couple With A Special Needs Child

Hope for the Caregiver / Peter Rosenberger
The Truth Network Radio
October 15, 2018 6:34 am

A Doctor Said These Horrific Words to the Young Couple With A Special Needs Child

Hope for the Caregiver / Peter Rosenberger

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October 15, 2018 6:34 am

"Take IT home and just love it."

When their son, Jonah, was born with severe disabilities in the 1970's, a physician said these horrific words to Rob and Merrill Galbraith. Stunned, enraged, heartbroken, and desperately alone, they struggled along the path of isolation so familiar to caregivers. 

Rob, a veteran Nashville producer, songwriter, and player (Ronnie Milsap, Kenny Rogers, The Bacon Brothers to name a few) returned to the show to share insights he learned from a tough journey that spanned 34 years until their son's death. 

Also returning to the show was Greg Tornquist and his son, Aaron (40). Aaron lives with Down's syndrome, and Greg and Aaron helped us bring attention to October's Down's Syndrome Awareness Month, as well as insights Greg learned from his 40 years as a caregiver for a special needs child.

Aaron is an ETA - and Elvis Tribute Artist, and he rocked the 1956 Elvis with this attire! 

Friends for more than thirty years, we sat around the desk and swapped stories and poignant moments from our combined 100+ years of caregiving.  We also shared a few laughs that come freely now with perspective.

 

 Author, speaker, and 30+year caregiver, Peter Rosenberger, hosts HOPE FOR THE CAREGIVER heard weekly on more than 200 stations. 

Sponsored by Standing With Hope

 

 

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Love to see this is hope for the caregiver, the nation's number one show for the family caregiver. I am Peter Rosenberg bringing to three decades of experience help you stay strong and healthy take care of someone who is not how do we do it volume that we are to take your call 800-688-9522 and we are looking at the 65 million Americans every day who put themselves between an impaired level and even worse disaster how to help those people look like, how do you strengthen them. How do you keep them fiscally healthy emotionally healthy.

All of the above. What is that look like this with the shows about and we love to have you on the show 800-688-9522. I do have some special guest in the studio with me today and just go around the remember first what wave it.

I forgot almost forgot himself the baron of the board the Sultan to sell the Earl of engineering. The man who put the word care into karaoke. He is John Butler. The count of muddy disco. Everyone really want me to do some very okay because I love, I have no doubt of Jon I have a roomful guest you got a clue and there I know what's going on. You will rank one of their what's up when I had last year we had the great pleasure of having Aaron torque was stolen. Hearing awareness to this particular month, which is down syndrome awareness month and Aaron drug his father in here with Greg and an errant had such a great time being on the show other way around. We had such a well-timed having Aaron on we did and and Aaron.

Toby said it was a dream come true and was well and your back and I told you. Have you back and you could ask your dad all year long have you back to Montana every year about this and so will wait we will make this a tradition with you and we were glad to hear Greg and I've been talk about this and that I invited Rob Galbreath is also been on the show with when we first started the show I think is been a while through four years and all of us, Robin, Greg and I have something in common, all three of us are caregivers or have been caregivers in our lives and think between the three of us.

We bring about hundred combined years of experience I'm good for 4030 and I got 32 so yeah that's if I do math right jobless data. 34 so people say heading, place that we were all part of the sheet array tribute band it's just right for you.

But if well it is that we and I wanted a lot of times when you hear the word caregiver you think of middle-age women that's that's the norm but we got three guys around the room here who have various roles to his dad's one is a husband as we want to talk to men out there and spent some time today we will talk also little bit about the special needs family and what's involved, what are some things go on and and so if you would be a part of that show. You can call in 800-688-9522 the count to himself will take your call but first Aaron said he's going to help me introduce our segment at the top the hour, which is the CAC ever For the day that something so you did hear that Greg Greg doesn't have headphones that we have the old Batman thing for you and the caregiver tip of the day was brought to by standing with hope, which is the presenting sponsor of the show and standing with hope.com and that's the administration offended many many years ago we do to programs for family caregivers which the shows part and then also for Gracie's fellow amputees in West Africa. We just returned from a trip they recently were we putting legs on her fellow entities and you could be a part of that standing with hope., take a look and see what we been doing better caregiver tip of the day is push back against the isolation push back against the isolation isolation is one of the toughest issues that caregivers face and Rob do not talk about that a lot. I want to but since you're the eldest among us, and I got that going for me which is nice to your deathbed you'll try to step you and I talked about this many to and you said one of the first things happen when we when Joan was born. Oh, I know it shall in relation and and what you guys felt with the isolation to talk about that but you should isolation them on what kind of nice looking. Talk about what you feel like when you have a problem like that many families if we did we felt like we own people the world had that problem.

You know, we know anybody else. And so that was a shock of any drug dealing with written and then we can feel like we are part of any, community, or getting help until we found the Kennedy Center over here which is mainly for kids with Down syndrome think it's a lot of stuff to and Joan and then my daughter Lisa went on his role model. She was to John.

And for the longest time that we know it sucks. Nobody tell us anything you have any many.

This was in Nashville so no doctors came to you and said hey, here's a promo Joan was born going to the doctor that delivered him and he only severe problems now to the doctor a few days later and told him said, I'm not sure what to do here and he said just take it home and love it is such a genius told me it it yeah you nothing about a never delivered child, evidently with serious problem for the later on we met the doctors at Vanderbilt who is high risk pregnancy doctors their wonderful but then in between. Then we we finally found the Kennedy Center over Peabody. It became part of Vanderbilt and and met other people that had kids with problems, but until then let us know so that isolation that you felt you felt literally alone, you know anybody and John has six serious physical and problems in and we know anyone heading and others like is that of promises never see him no, what were ways that that you were able to push back against it, or were you Mark I see you know I we thought that moved to California something that would really country all that much time can go. We finally found Harris Hillman so they wonder why Peter hadn't been no let me back up a bit. Rob's been a longtime producer, musician here in Nashville.

Worked on. I don't know how many records Kenny Rogers Ronnie Millsap just to name a few and then do this for years.

Greg is a longtime songwriter, musician and band since the 60s effect. We were coming up here in the studios and see all these yesterday with the their long hair and everything it also said to Ernesto that looks like your dad Greg said no but here was much loved. It was a different time then but but it but so you are you are in the music business you work that locked into a country music path so you think I've taken on the road going to LA with better music comes involving more back and changed the tenures labored back late 60s early 70s music. I was involved more army rock, pop step one country and I thought about but when you know I never thought there made plans to move out to California and I'm glad we didn't because I'm selling more born Brandt and then after Joan and we've made some ties here Nashville and without that we can't go. We were so blessed with what we did find between the Kennedy Center and Harris Hillman. One thing out.

It was yeah baby. Child like that many of you have a budding to commiserate with and talk to help you than it is stuff I don't know what I tell people that I would want to go through that again because heart-to-heart things at once in my life up when I wouldn't wish that on anybody but it enriched my life more than anything else they may put things in perspective.

Joan left it and I visit. It was tough of you look back on it, you know it. It just made you realize lots of love. Things are important and how things are important and was a huge blessing from a simple he blessed a lot of people, but it was a tough one.

Well Greg isolation the same thing you had it you had a difficult diagnosis as well. Well, they didn't. Our doctor didn't say take it home, but he's in fact he said don't take him him home just leaving with the state and they will care for him until he expires. Aaron was born.

The life expectancy of down syndrome child was 25 years when Aaron was born.

The life expectancy of someone with Down syndrome in the United States was 25 years and that's because parents were advised to take the children are take the babies leave and leave them with it. The state and not just the state of Minnesota where was born, but all the different states over this for many many parents that Erling will close the microphone and tell us what was your you just had a birthday and how old are thorny here is all 40 years old and you have defied the odds. Haven't you. Yes I have one now the life expectancy for someone born in the United States one and 700 babies is down syndrome and the life expectancy is 60 and that much improved from 25 to 60 in a 40 year period is because parents are no longer advised to leave their babies with the states, and with the government's and their care for much better.

You must've felt terribly alone as well. We had no idea that we didn't know anyone with down syndrome. We did know anyone who was familiar with down syndrome and we lived in a small town in Minnesota where the weather was not conducive to anyone with down syndrome and so we moved to Nashville because of Aaron but what why Nashville well because I was involved with the music business in Los Angeles before I moved to Minnesota I was still involved with it long distance and had friends who are moving here to Nashville. At that time and I've also was raised with southern parents in southern I felt comfortable with Nashville with and whether in Nashville was much much better for hearing. If if people in their 50s 60s and 70s could have children and had a Down syndrome child, or child handicap income had challenged anyway that be a lot more aware of it and then not shocked as much and know how to handle them over to you here 20 years old twentysomething whole world you're just out of college in the whole world revolves around this and you don't know that how old were you when Joan was born I was 29, 28, I was 30 when Aaron was so we you were very, very young, very, very alone, did you did you have a good church situation around.

No yes we did have a good, but we did have a church situation around us and it and but they didn't know how to react to it either. No one, no one knew what to tell us where to work in a talk about this a little bit more.

This is this is hope for the caregiver and we are on a mission to punch against that isolationists are caregiver tip of the days to punch gives that isolation. That's why the show existed, were glad you're with us 800-688-9522 will be right back there some great news.

If you miss the deadline to sign up for health insurance or to sign up for a plan you're not happy with you still have a choice. Medicare is a healthcare sharing program hundreds of thousands of Christians are part of this can save you a lots typical savings for families about 500 bucks a month you can join Medicare anytime it's easy to call and look into it. There's no pressure at all man what a difference it can make 855 25 share. That's 855 25 share and he never struggled to trust God when lousy things happen to you.

I'm Gracie Rosenberger in 1983 I experienced a horrific car accident leading 80 surgeries in both legs and became I question why God allowed something so brutal to happen to me. But over time the questions changed and I discovered courage to trust God that understanding along with an appreciation for quality prosthetic limbs led me to establish standing with help more than a dozen years we been working with the government of Ghana and West Africa, equipping and training local workers to build and maintain quality prosthetic limbs for their own people on a regular basis. We purchased ship equipment and supplies and with the help of inmates in a Tennessee prison. We also recycle parts from donated lambs all gases to point others to Christ.

The source and my help and strength, please visit standing with help.com to learn more and participate in lifting others that standing without.com I'm Gracie and I am staining with help caregiver man, I'm really John right now who are struggling there. We think that you play this to your head against the wall.

Welcome back to the show for caregivers about caregivers hosted by caregiver IRB Rosenberger along with the count of muddy disco and we are here to bring you three decades of experience to help you stay strong and healthy as you take care of someone tickets that are actually in the room. Today we have 100+ years. 100+ years because I have a mouse. I have three gentlemen here who have logged in a lot of time and 800-688-9522 of you will be on the show and I'm joined by Greg Carlquist.

His son Aaron who is here and here. Aaron can redo his big moment here, but readier okay and Erin is here to help bring a little bit more awareness to Down syndrome because that's what this month is October Down syndrome awareness month. Aaron is 40 years old. He is amazing young man and he's dressed you kids if Josie was a Facebook love Elvis went out Elvis 56 what you went with today, right yes I am today. Elvis left it where it is listed as though he is a very serious element that you don't call impersonator what you call it, ETA aviation for Elvis tribute artists build Elvis tribute artist is not impersonator ETA is TCB with ETA is ETA right but you TCB with ETA know TCB is a taking care man there you are, and I got a call attention to Aaron shoes.

Oh, I know what he's got on these beautiful white wingtips just tell her that that was a birthday gift for your 40th birthday and you are rocketed mid 1956 Elvis and that I most enjoy about Rob Galbreath long time, producer, songwriter, musician extraordinaire and distant great group of guys who have logged in some serious times as caregivers and we we put in the mouth with the three of us have and we got a few things to talk about. As usual, this segment right now we go to our other spot that we have Aaron you go to set this one up because this is very important. Your dad because he 70 now I know that so you want to tell us what what this next segment is to today's today is a senior moment facing today's senior moment brought to you by morning point senior living and memory care center you like it was shown that Hank Junior work towards your jewelry today senior mobility by morning point senior living and memory care center, morning point.com POI and TE I just got the host great event with them the other night with her head senior's got talent. It was a lot of fun and but today senior moment our little thing we want talk about is check your apps check your apps check your bills. Sometimes we forget that we leave things going and were paying two dollars here for dollars here. You know the cable company is just keeps hiking things up and we don't bother to check and guess what to seven money just fly out the door.

And so if you got it and you don't care about it. Don't worry about it. If you need the money. Check your apps on your phone because as little two dollar things will add up. After a lot of the absolutely do add up. And another thing is, even if it's not something that is a subscription service or something like that. If you're on a limited data plan if it's even if it's free if it's sucking up data and you don't use it. Your ending up spending that money elsewhere as well and you don't need to be doing so if it's if it's a useless apathy or if you find that you haven't been using the last month or two maybe think about the check your cable bill, check your home security bill all those kinds of things. I know that my my sister-in-law went through my folks with it and they had they had just enormous amount of little fees here and there that they were in use is money just going out the door. So that's our senior moment today senior moment Aaron, senior fortune and that's it. The crate job at 800-688-9522. I would talk about isolation today and were bringing some tough topics, but we were all grizzled veterans run here will have Arctic blonde hair speak for yourself and for John John's the baby and one Arctic blonde hair color today for those he's on your finger here, but if you want to watch.

Also on Facebook love you what to hope for the caregiver and Facebook love and up with the settlement YouTube channel little bit later and we caregiver suffer from three eyes mama let you guys unpack this little bit is what is the show unfolds, we lose our independence we become isolated and we lose our identity. Greg did you did you feel you don't talk, but this even think about it in those terms until afterwards in the kind look backwards over your life and realize that's exactly what was going on.

Actually, you're the one who turned me onto that Peter to the three eyes and just to make perfect sense. I did feel like I would have lost my independence we need. It's not something you recover.

If your in it for life and I'm in this for life. You lose your independence but when you do that the your identity does change, and as you become isolated, which also happens whether it's from the beginning like Robin Merrill was for us.

It was when you lose that it said it's hard to know what to do and you've been a big help to me, actually with your book and will let's talk about this after the break of fortune. We got to go quickly to the break here. Stay tune with that because I don't want you to lose it. Think this is hope for the caregiver 800-688-9522 will be right back some great missed the deadline to sign up for health insurance or to sign up for a plan you're not happy with you still have a choice. Meta-share is a healthcare sharing program hundreds of thousands of Christians are part of this can save you a lots typical savings for families about 500 bucks a month you can join Medicare anytime it's easy to call and look into it. There's no pressure at all man what a difference it can make 855 25 share.

That's 855 25 share and he never struggled to trust God when lousy things happen to you. I'm Gracie Rosenberger in 1983 I experienced a horrific car accident leading 80 surgeries in both legs and became I questioned why God allowed something so brutal to happen to me. But over time, my questions changed and I discovered courage to trust God that understanding along with an appreciation for quality prosthetic limbs led me to establish standing with help more than a dozen years we been working with the government of Ghana and West Africa, equipping and training local workers to build and maintain quality prosthetic limbs for their own people on a regular basis. We purchased ship equipment and supplies and with the help of inmates in a Tennessee prison. We also recycle parts from donated lambs all gases to point others to Christ. The source of my help and strength, please visit standing with help.com to learn more and participate in lifting others@standingwithout.com. I'm Gracie. I am staining with help show for caregivers about caregivers hosted by caregiver. The speed Rosenberger bring you three decades of experience to help you stay strong and healthy as you take care of someone who is not 800-688-9522.

Are you already standing on the ground and that's the that's that's a good place process caregivers to come just catch her breath.

That's what we do on the show is is we we take it we we build a well lit path to safety when you can catch her breath taking me if you need to and then get rid little bit reoriented*develops healthy strategies and I've got a couple guest here several guest here that the studio with me today. Aaron Turnquist who is 40 years old bringing awareness to down syndrome awareness month force, and I'm grateful that you hear Aaron he is he is rocking the 56 Elvis look because Erin is a Elvis tribute artist non-impersonator tribute artist and he has a stake in how intensive you been to Graceland here and now. I first started going crazy somehow 16 years old and that was 24 years of glass and stand and you you and your girl for you.

You have lovely woman friend that you have found my missed Nicole's mom the same same girlfriend for 25 years that she let going to Graceland with ocelot yeah should address at this facility now serious LED is this is I asked Gregerson have assumed he said no suits. I didn't have a lot of suits yeah what your favorite one like the one I hate dim line and back in 50 sacks I got that one got status to and I want back in the 70s suits that you know what color of you know, there are no subject about your wife about a lost but I'm a bit of role with your dad is here with this.

He and I have talked many times about this this issue and and I you guys have an and Rob Galbraith. You guys bring a lot of hard-won experience in their something about a couple decades of this that really provide some some wisdom and some insights, some of the top of the date first will take a quick call from Susan Susan as a teacher you have student with you. Have student with disability. Susan you with this. Well, good afternoon, how you feeling you certainly welcome. Tell us what's going on in your classroom will take care and I have a lot of curricular data, you have done it for several years now in a creek and then will have to think like an elf appointment at greater picture of a child care and there (as you make sure to include a pair.

[All of them say all walk and not care. So Kelly and fine here.

However, and I don't know how to morality (wedding is an example of a child in a wheelchair. I just wanted to get your your take on the child in fourth grade she have cognitive impairments or just mobility her reading and writing level of about first grade point great that her writing level are delayed to be there. She want to make friends like to be included and he paid so well I got to dance was with the Sun Tzu built with special needs and so forth, tosses what you guys you would say there is going to air on the side of kindness and normalcy. I see you trying to include them. You may delete all way of speed on everything.

I think love those kids like being treated like normal, as opposed to their hindrance or something and I think his arrows out of normalcy encounter should be all right. You will and what about what about as a father. How would you want the child treated not just as with the kid was we do, but you also you got remembered that the parents want the kids have a safe place to go and not be singled out and be an object lesson for class normalcy is like you including them in all the functions as best you can and you sent a kind person. So I wonder more about you too much of I think I would to suggest something this not opposite of that. But in might be thinking outside the box a little bit in that is if this this girl is going to be there week after week, and the other kids are going to get to know this girl but it might be an idea.

I don't know if this is possible because I don't know the situation with wheelchair exactly, but I would. Maybe you could get another wheelchair maybe can get to wheelchairs in there and have one of the end have the another child sit in the wheelchair or maybe have her if she can sit in the chair and have someone else sitting in her wheelchair and get an idea of that and just deal with it.

One time maybe doesn't have to be on ongoing just one time. We just take on the issue of what it what it is to be in a wheelchair because it's different in and Rob's right. The normalcy is how the child wants to be and how the father would want to be but it is the there's a reality there that needs to be dealt with in the kids are smart, they'll be able to get that and I don't know if there's another wheelchair in your church, or if this girl could be taken out and put in. She could be in another chair and have somebody to sit in that chair for a minute and get a feel for it is an idea that also Susan, the maybe good idea for you to sit in a wheelchair and let the kids take a statically vary around the room you don't. Today's world is a little bit different in that we are little bit more familiar with this.

That is what Gracie has told me often when she grew up she had severe problems long before she had erected that did so much damage to her body, but she had that she had to go to school with the patch over the kitchen, make fun of her that come stuff and I think that you know she was okay with explained it the first time she did wanted to be an object lesson every time she went to school, to have to explain the patchwork now she has prosthetic legs yeah yeah desk about her legs. But you know after while she gets tardy ask about her leg. She will she desk about her and and so the, the, the disability doesn't define the person. It's a part of what they have to live with.

But I think the more you just have just if you if you normalize it and realize this is just life munitions part of it. It's not something we all have to freak out about it have some kind of sensitivity training to we just live life is that does that kind of track with you little bit you have the Catholic character and about parents and so they probably are for further handling (about including everybody even taken a wheelchair part of the family that I lead with him on a mission to do was help the church, keep up a little bit when you deal with this because I don't think the church is really known how to to the institutional church has known how to walk into these things without just elected walking on glass or egg shells or something. I see just go in there and just have the conversation just normalize it. You don't okay.

My wife doesn't have the legs, you know, we deal with down syndrome or were doing with this and if you after while okay if if somebody's that hung up on it. Then they got the problem, not, not me, and didn't have to work that out but they have to work it out on their own time, not at your not at this child's expense and not at this family's expense. I think what we heard earlier from Rob is that you know they were so lonely they didn't have anybody Greg that it was such such a terribly isolating thing that they don't want to be the test case for everybody. Learn how to deal with this just just be family just be you.

One thing I found out Rachel help Susan Ewing to Peter what site does John one thing help Marilyn I get there was humor you know Hanover peters from the worst part is you know just care less and less just crazy hard and never makes anyone laugh you have some I was serious profligate men.

Sometimes I'm humor left itself will you do and what John said Susan you have something more specific you want to address the kind of girl. I don't want her extreme heat and allow chair and my interfering rewriter down there is Lisa and I handled that with down syndrome. Earlier in his life was when he asked about a silky, you do have down syndrome. But this person has red hair and this person has no leg and this person has something else and everybody has something years is down syndrome and I wasn't trying to sugarcoat it. I'm not exactly sure where you going with with the object defined but I don't think it has to be a Sunday school lesson each week know it and I think that that's what you want to do is eventually okayed the novelty of it of wheelchairs and prosthetics and down syndrome and everything else. The novelty of it, wears off after while this is now so you know don't over think it is just sound like a nice person.

You've probably warned about too much is no do what feels natural to you and just treat the child normally let them be part of a group and the faulty medication to kick your kids will handle it. I offered to let the parents know that that the kid is safe and not being singled out for object lessons whatever that the kiddush which is just were just glad to have you kid here with us and I guess that was my my question was, do you guys think that she should she should reach out to the student and parent about this without be a good or bad thing. I don't know that's nice I guess you never heard if you have what you can ask you what what are their concerns if they have any special concerns and think that you could address and that way but but engage with the parents and so that the parents know this is a safe place for that child be scissors this out as an option for the child and we were just so thankful John was in some school and had somewhere to go to care about is this child is like a is it happy to be there or older. She is the girl more what it was they had to be there or they have some real estate. They would be if they didn't know if they could make it this place where we all ran and so I could think is cute thing you know I met Catholic school, and there will requirements and you know you and happy like I called loud because that's when Jonah knew the answer for this one church and one got a discount in charge of the Sunday school or he was really nice, but the church they knew the child like that and we went to St. bees and Susie photo designated some I take care to look at him and send beautiful one and we felt so included in this, that and you know that they were so nice about eager to help this problem.

There 20 years will regular say well I would just echo what Rob said about not overthinking it you're doing you just said you said a book for when you said the parents that you're the first one that scout you know that me that's I mean that's what he said about being a good person about just reaching out be treated in normal not objectifying every week, but at least dealing with it one time with the other kids were it's real and and then that's it.

And then you know everyone has something this child has that deal with you know when when my kids were grown kids are pretty resilient and my kids are growing up and when their mother became an amputee know they didn't really make a big deal about everything one time there was a deer in the yard and Parker comes running and he was just a little kid and he said mom gets a Lego guy come see just put your leg on Monica. I haven't seen this thing. But you can't just kind of adapt and so the best gift you can give to that child to that child's family into that classroom into the parish itself is to integrate the whole dynamic with it and just let it be just the just normal. Just we got adaptive equipment we have special needs. Okay big will and and that's how you do it.

It's not that that like Rob said, you just don't overthink it too much. Could be worse. You could have like a personality like peters. No wonder that that sissy because exotica's fiscal problems for you all the percent of the sick to the superintend of the site is David have the two incidents so that question. That said, that was my life so I listed out Susan, thanks so much for the call just for the doll over heaven and we hope this is been helpful to give a big shout out to my friend Robbie Gilmore over North Carolina because I know this is an issue that is deeply passionate to him and their listing over there in the Winston-Salem area and working with all full of special-needs families, and this is something the church can and must.

If you miss the deadline to sign up for health insurance or to sign up for a plan you're not happy with you still have a choice.

Medicare is a healthcare sharing program hundreds of thousands of Christians are part of this can save you a lots typical savings for families about 500 bucks a month you can join Medicare anytime it's easy to call and look into it.

There's no pressure at all man what a difference it can make 855 25 share.

That's 855 25 share and he never struggled to trust God when healthy things happen to you. I'm gracing Rosenberger in 1983 I experienced a horrific car accident leading 80 surgeries in both legs and became it. I questioned why God allowed something so brittle to happen to me. But over time I questions changed and I discovered courage to trust God that understanding along with an appreciation for quality prosthetic limbs led me to establish standing with help more than a dozen years we been working with the government of Ghana and West Africa, equipping and training local workers to build and maintain quality prosthetic limbs for their own people on a regular basis. We purchased ship equipment and supplies and with the help of inmates in a Tennessee prison. We also recycle parts from donated lambs. All this is to point others to Christ. The source of my help and strength, please visit standing with help.com to learn more and participate in lifting others@standingwithout.com. I'm Gracie and I am staining with help. Okay, welcome back to the show for caregivers about caregivers hosted by caregiver with the music today.

The really things very little to the caregiver were evidently the count of mightiness you also. So we're thrilled to have you back 800 688 95 just let have you spent a very fast hour of head Aaron used the Internet for you or your your encore performance here on the show and were glad to have you with us to talk about down syndrome a little bit and I will tell you something, Aaron. Okay, your father said to me, and of this is Aaron torque was loose now join his father Greg is here. Aaron is four years old. He lives with down syndrome Rob Gavitt.

This is the studio with this as well, but read Greg and Rob are multi-musicians. Here the national scene and they've been dealt with special needs as fathers and but errand I was told to your dad about you okay and he said Aaron is a wise man.

As we said about you know pretty much every guy I know wants to hear that from their dad and so as you think about that with your dad saying that about you and all the challenges you dealt with down syndrome things you had to not be able to do to speed on other things that you want to do in any can't do them very well and so forth. As far as driving and things like that that frustration, but your dad says your wise man.

Yes, I have no doesn't make you feel as you look at your dad, you guys been through some some some rough rivers together yeah my dad 20 years and I will. I was born in Minnesota about dousing people can't survive out there. Minnesota and I asked about four years old. Plans made up of Hansbrough high school and you go toward their didn't yes and what award was a lesson fast currents for people went down syndrome.

Get them a blog, homework actually yeah it was the hallmark award for graduating student with the most courage wasn't for the house yet. It was his most current. Higher student body and in the time Hillsboro fairly large graduating class. Big surprise for us but Aaron is wise and he's also modest. Will Aaron I think that I think there's no higher praise that you can elicit from your father from any guy from his father and father to say that your wise man so well done young man will do what I my first hand is getting on last year were talking about the well is more pronounced in this mass I have experience with my girlfriend, lamb, and with my 25 years. I know her for a long time.

I first heard about my dancing his anime on the camera.

He's a commitment as a caregiver on the care receiver and I first met La my furnace came Tennessee, came to his concerts see them play a great job on that is pretty good is gaining.

As for a man of his age and that is all right. The specimen people can't see me right now what I'm wearing is the stuff I'm doing I'm done in the legacy of Elvis from Don legacy keeps his music alive will you doing a great job with that of Greg parting thoughts. We got just about a minute to left of it really that much but just real quick. Well I think I'll take away Susan's call and her concerns about this child in a wheelchair and and hope that she and some of the other listeners were able to benefit from what we suggested that it's it's an example of how individual. Each situation is and how challenging it is.

We have a we have a mandate as as believers to the sick naked hungry prisoners and their love subsets of that and I'm on a mission to help equip churches on know how to not just minister the travel specialties but the whole family.

The family wants to feel below Two guys of the Tay that Rob last last word Rob the same mental you know, be nonpublic and whatnot and people being used to be around so come everyone I met with Joan of people who stay at FSE Feste similar them out in public and I see somebody child problems.

I was struck to terminal necessary high from something not just engaging the folks in my file for someone to talk with a fingernail better off their life is bigger subject to late encapsulating the one one since I just just engage pushback against isolation good listener. This is hope for the caregiver, Peter Roseburg. Thank you God for showing up today. Do it again will have more fun with you want to hear this podcast every thing else standing with hope.com stating with help.com. Please get involved in what we do and I think you'll love being a part of it. See you next week


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