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#415 Erin Galyean Calls The Show To Discuss How Caregvers Can Become "BADASS ADVOCATES!"

Hope for the Caregiver / Peter Rosenberger
The Truth Network Radio
June 9, 2020 4:58 am

#415 Erin Galyean Calls The Show To Discuss How Caregvers Can Become "BADASS ADVOCATES!"

Hope for the Caregiver / Peter Rosenberger

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June 9, 2020 4:58 am

When Erin Galyean's sister received a terrible diagnosis, Erin determined to not only support her, but to become a powerful advocate on her sister's behalf. 

"There were times when i was intimidated, scared, and even felt stupid, but I pushed through all that ...the stakes were just too high." 

As I told Erin in this interview, I wish I had her book when traveling through so much of Gracie's journey. Erin brings a passion and contagious enthusiasm to fellow caregivers and communicates clearly that ALL of us can become: 

 

Peter Rosenberger hosts HOPE FOR THE CAREGIVER (www.hopeforthecaregiver.com/radio).

 

For more than 34 years, he's cared for his wife, Gracie, who lives with severe disabilities. 

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John, this is very cool. Very exciting were doing something brand-new today and I'm glad that you are once again in the copilot signature in John are you in the backseat telling me how to do it. I have so I'm back driver.

I I do have your children and your wonderful backseat drivers when I would eventually look this is over. The character Brian Peter Rosenberger and were glad to have you with us. This is the nation's number one podcast for you as a family caregiver and every week I do a major radio broadcast world about the restaurant I worked almost 200 stations I write because I learned with results on seat while you were there you were there when I started with the podcast has really taken off. I wanted to have a mechanism where we could open up interviews and really spend some time digging in some meat on some topics and so I've got a guest on. They let me let me set this up on why we talk about this today some years ago I was at the hospital. Gracie was having a very, very significant surgery and I was standing in the family waiting room that this is a critical care waiting room and there were all kinds of people there but in the middle that room was a man standing who was how to describe he look like you just come off of the farm was dressed in us in a coat in the end up at a Thai he was holding his hat, literally holding his hat in his hand and and he was 12 and he looks so lost in and I and II want to be in it in his environment. I'm sure he was very competent, but in this environment in the hospital. John there were all kinds of strange noises, intercoms, a blade, you will have a lot of window sometimes in some hospitals. We could see daylight.

I write right and so their people dressed in mourning for him. It was very fun for people dressed in strange garbs unit garbs strangely cut. But they were in it, and and you could just tell that this man was used to probably heavy machinery, livestock, something like that very very significant things that he deals with his life but he was not used to this and he looked lost me truly lost and I was like oh my goodness. And I found that day that I was never going to be that way and be at the mercy of a system like this. I just wish I was. I was just convinced that that I was not to do this and that I would want to be able to help other people navigate to that as well to this point I have never lost a battle with an insurance company. I have fought hard on this issue in and try to be able to navigate through Gracie's hundred doctors, 12 hospitals in seven different insurance companies and it just that the numbers are rather fast so you gotta be a running list. It's it's it's a it's a big task of what we've done through her medical nightmare and then I got up I got email from this lady who's gonna be on the show days with us right now and she's got a book about this very thing about this topic and how she got into it in and out is a listen to her unpack her story, I realized man I could use this book a long time ago because everything I learned John. You know how I learned I learned the hard way yeah and not the fun part way like the know know know that the Lord with an end and I hate I thought well okay this is what we got him on the show we gotta talk to this lady and let her just because she cheated avid experience of the season.

Most of us don't have any experience in this kind of realm as far as being an advocate for level in dealing with the system with the were thrown into so we only have to live sink or swim that goes on various vendors and Karen and its it.

It's a it's it's a busy system without a lot of mercy yelling at hand and and so anyway so I wouldn't have her on and and I'm really glad she reached out her name is Aaron Galligan and Aaron are you with this white male.

I find that with me. That was a natural Aaron long picture of the farmer you like.

All I did broke my heart when I saw this guy and I thought how many more people like this who were very competent in their world and in your one of those individuals you are extremely competent in your world and you get thrown into this thing and and here's what you did with it and that's why I'm so grateful to have you on the show so first off, set the table. How did you come about how to come about that you were in this world fell on me. I go out and wrap in a family of five very very loving family, and in 1990. Part of my story that 1996 my father was diagnosed with non-Hodgkin's lymphoma and I went 20 years old I was 19 at the time and place for lunch later and so my family just kind of like that farmer was going to situationally nothing about never been caregivers. Right now they say that fell on my mom's shoulders.

I was in college at the time and my mom learned a lot in caregiving. I did learn anything that I would kid and adult can write, and 20 years later that's working on my family gone through grieving and figure out life that my father who was larger-than-life, great personality, a lot of fun to say that heartbreaking when it happened 20 years later, my sister will often my best friend went diagnosed often with them, and very ironic because they're not related to asset because I don't know enough about that. So it's not genetic diseases. Just one of those things yet and I don't think I heard the way we were told not genetic that we warrant and can really concerned about it because we were told we can't get it and I told Mike which actually had a different strand of it anyway. There was any connection node at progressive and timing. You will find a different story. But as of today we have been told there is no connection and she was a healthy active 47-year-old woman with mom and Kim girl and when she got non-of them found on she also, because in autoimmunity and audit entity because I wanted in a lung disease was a very rare and aggressive underthings called bronchiolitis a black frame on nose out of probably not but, also called popcorn long but people probably smart that he can get that from smoking maker. I believe Dell have more common term for an it's very aggressive, very rare and it basically just took a toll on her body after having to go through chemo treatments as well and after 13 months and hacking away so we obviously learn things from my father right. I wasn't there for him because I was in college, soaking different mindsets. I just want that age because my determination. The second time around was probably little different than it would be for first time Ernst.

I hope to share that give back to others and have determination. I did only because I was cannot live my sister even I know it didn't turn out that way. I felt like we did get her the best care possible and all caregiver or an advocate can really do like so what. What was your major in school English was music.

Mom was using it it in music school, I would imagine the same when you will be when you're when you're studying English they're not telling you how to deal with the healthcare system is that a fair, sacred, all now I am a public health trainer so all know that advocate for patient I teach other sales reps how to get techniques that I talk about when I get into that help prepare you for this heart-wrenching situation where you're staying your loved one dying in my situation and hopefully that's not for every one of your listener's what prompted what the suspect is okay.

You, your father passed away. You sold that you sold the total took your mother in the family and with this thinking room with your sister you like no were not. Udo will work were to go after this thing with the was a little different focus in a different approach with so what what was that switch. What were you in a situation where you saw something happening to her or that she was getting lost in the system something.

What was the switch for you. I don't think it would anyone. I think that I like what you are a close-knit family. I was determined to not experience that heartache again and fell from day one. When we found out she was diagnosed with cancer.

I thought okay what were on everything in my power to advocate her heart. That doesn't mean that it wasn't scary and I wasn't intimidated by current situation, but I had to keep reminding myself on her advocate and obviously my mom asked about brothers my pictures Mary, we all did not know but I can I talk to Mike Grant and say that the mindset that I had and will pour out your journey. You know our darkness that, and so you catch me think you have to pay close attention in order to advocate, I have long maintained that the thing about family caregivers is that the insurance companies in the hospitals and physicians and so forth. Don't take into detail probably likely should is that we won't take no for an answer and it is that something that was old, but not all of this but but many of us, those of us who who throw ourselves into the warrior mode of this this journey is caregivers as advocates and warriors that the note was not an option and and so when I fought insurance companies for example. I learned very quickly that if I say no. Gracie suffers adversely like say no. Gracie suffers adversely was there with her bulbs like that with you where you just take this for an answer. I would find some kind of work around him to push through this or what was that like for you and work in my family Helped. I was on my own. I don't like that you're either writing at the time felt I was in pertinent part, advocating faraway or if I traveled to her I would advocate for her in person, but the situation I think it still did it. When you bring up example being a warrior is my sister because she had the three diseases she lost weight rapidly. Obviously, the keynote does that, but then also in autoimmunity she explores in her mouth that she could really and on and went along to the it makes eating difficult. Because we don't think about how your breathing when you're eating right we don't think about it just natural for those of us that are helping people along to the challenge and it can take a long time just to eat one meal, so with those three issues.

She was just losing weight rapidly and we have for feeding tube for her and her pulmonology team said no they didn't want to expose her to being infected that would've been a feeding tube at home and hospital compaction and no not that they will all they just took that with their and feel right it right with because she couldn't keep up right. She just kept losing weight and losing weight. There is no way that you actually can gain weight back which that's important because if you're down 85 counts that she got one point fight off the now. She weighed less than 100 pound adult woman tell that you can't fight when you're that weak and fragile, so I reached out to some position that I didn't know I don't think you get on a pharmaceutical sales trainer, I had like backdoor access.

I did not we just difficult call. What I actually called email family did some research and she found an article about my pictures rare lung disease and she said that me popping up Dr. Christian.

And so I looked at the article and I like okay let me see if I can find woman fishing thinking about this rare lung disease so I reach out to her and thankfully she email me back. This woman is so kindhearted and not only did she know me back, but she gave me a list of information and it was so helpful and one of the things that was in that email, and I don't think I mention I love. I'm pretty sure I didn't even mention anything about a feeding tube to her. I did mention my sister had and that we needed help with advice that you have one of her key points. What she needs a feeding tube because that lung disease which we did not realize it burned so many calories because you're trying to brief and self-feeding. But the only way that she could gain weight and she will never gain weight without a feeding tube so that gave me. What did she say about the risk of home. She said of course there is a rent but she will survive anyway she won't be able to fight back. So basically what the risk is worth the reward is no way that area for just a second, because before because I think that when you're dealing with certain realities. There's always risk. There's always with you can't mitigate every single risk you have now is to just walking out the door but but it takes course every day drives. You know okay will be. It's everywhere and I think that sometimes there's big Will I got some questions for you. I just wanted to be the lightning round thing.

Do you you feel your experience that some of the risk are our lead on you as a caregiver and the patient primarily because of this is good science or do you feel like this is good legal CYA so I think that the legal aspect of it up so late and I do believe that they hear the problem because her kidneys was so where they want expert so they were going off what they need, which is probably a limited amount of information right thing. They were ignorant but they don't have permission from their experience because they've never dealt with that specific disease right because it is not a crime. We all slip's utility, but this is worth, I want you to know what you talk about the title you look at what you do because humility in the face of that ignorance is, is it important thing and sometimes I think that a lot of the people that are pronouncing this decision still bring the level of humility of their own ignorance about what were doing here that we are in uncharted territory. This is where you stepped in and said you know what were going to work with you to take the reins of this a little bit more ourselves. That's where you came up with the whole concept of what you're all about in your book and tell us about the call that becoming a champion. Ella wanted all about equally fighting for your loved one now my coaches know I'm not here to badmouth position or not because I do believe there are humans and are doing their best, but many patients that there looking after you hopefully have one in your life and avoid sometimes their q. week, sometimes thereto medicated, sometimes thereto overwhelmed right if you've ever been given a diagnosis even if it's something minor in your life that caught you off guard. Sometimes you bring the places and you can't really concentrate on what's being said, if you have someone with you, they can do your voicemail quickly. Your ears and you.

Every patient needs an advocate in fact I position that I've meant that I met one last night my house and I went out to dinner for the first time and how many months and we sat next to a position and I told her that I got the hospital let which means him. He worked in the hospital and I tell about the book and he said that no important I believe every patient needs a patient to get many times from different healthcare providers what nurses are position so you really think that for them. We do you write some subsidies. They are very difficult seeing that with Gracie. Sometimes he was so weak and she was so groggy from or in such pain and such trauma. There's no way she can articulate. You know what's going on with her. She needs somebody to come to bring it to and I've also seen work were you know the nurses would make mistakes and they would want to give her something and look at her Bruce Banner Chartwell of, and they almost gave her something that was her sister was a nurse and she caught this one of the they were going to give Gracie something that would cause her to go to anaphylactic shock.

Stalkers are before you go to get ready. Give her and it makes caregiver sometimes feel like we gotta be there 24 seven that's hard for us to do the impossible for us to do what it it at the same time that there's just too me, things get lost in the shuffle and and I have maintained this term caregiver authority for some time that we have caregiver Lord is we don't assume you know the science but we know our love one in the cells like where you came in that you knew your love what you you do your sister did Mr. know the size but you can find that the people to did and we got there's there's always a better way.

Joan are big fans of there's always a better mousetrap away to build a better mousetrap when you're dealing with these these overtly complex long-term situations that there's really not a path forward to your sisters the same way so so out arose like you know when I'm better mousetrap.

I hired professional. I've My father would've made out all you will notice that I gave you that you ask the questions. That's what it is really just stop Joe to stop so so you got a like number one patient caregiver can't do it alone.

100%.

That's my number one strategy in a book. It supporting and for some people here another come from a large family may have acted if you could get silly which is what you on the blazing right you guys a wallflower's weird feelings. All I know right now I'm bringing some some greasy food wall.

By the way, so 14 and make sure the patient is in on that information with their patient so happens that the 14 that because you just said you can't be there all the time. No way personal you'll get run out caregiver picking the real thing. And it's because you get my picture. Have you seen the poster child for church 27 years old and I need to be educated but I do have a key for educating yourself have a website that has the same name.com and I can't you go to find reliable information that legit even to go down that radical right when Google is very scary to take a quick break. It's about zero don't always stay with us here because we got a got more questions for you to follow the money up, figured you could handle this is caregiver. She's teaching us equipment just to be caregiver advocates for loved ones called bad ass ever.com is a website book is better in Roseburg. I'll be right after caregiver. Think about all the legal documents you need power of attorney will, living wills and so many more then about such things as disputes about medical bills.

What if instead of showing out hefty fees for a few days of legal help paid a monthly membership and got a law firm for life. Well, we are taking legal representation and making some revisions in the form of accessible, affordable, full-service coverage. Finally, you can live life know you have a lawyer in your back pocket who at the same time is empty. It's called legal shield and its practical, affordable, and must for the family caregiver visit caregiver legal.com that's caregiver legal.com. Isn't it about time someone started advocating for you www.dotcaregiverlegal.com on independent associate. Have you ever struggled to trust God when lousy things happen to you. I'm Gracie Rosenberger in 1983 I experienced a horrific car accident leading 80 surgeries in both legs and became it. I questioned why God allowed something so brutal to happen to me.

But over time I questions changed and I discovered courage to trust God that understanding along with an appreciation for quality prosthetic limbs led me to establish standing with help more than a dozen years we been working with the government of Ghana and West Africa, equipping and training local workers to build and maintain quality prosthetic limbs for their own people on a regular basis.

We purchased ship equipment and supplies and with the help of inmates in a Tennessee prison. We also recycle parts from donated limbs. All of this is to point others to Christ. The source of my help and strength, please visit standing with help.com to learn more and participate in lifting others standing without.com. I'm Gracie. I am standing with help and hopefully caregiver on a computer Rosenberger. This is show for you as a family caregiver, how you doing how you hold and I am so belligerent about with this. My wife Gracie from her new record resilient and if you'd like a copy of that record. So you do hopefully caregiver.calm. Just click on the cover of her CD through the front. Hopefully caregiver.com and think you love it chichi systems extraordinary individual who brings an amazing talent, but a passion for everything she just got up about what John before you better just hears of a friend of ours neighbor out here was a guy the record business in Los Angeles and is moved out here to Montana where we are and he's got a small studio in his house is huge blue sky, harmonica, beasties really talk to Eddie's wanting of to get in the studio with some stuff with Gracie on some blue stuff with her okay it's is Gracie your solutions is no but I have a right. Oh, that's just everything I like all the songs I've heard Gracie sitting or really really well done. She's got a great voice but it's II think all of the door.

All major notes will listing to she's been listening to a lot of blues on her looks. A device she's got a huge playlist she's been doing it so she had one as her alarm right okay I saved until I do the same thing absolutely blues. I know it's what she gets better, just better. Okay so here at clanking. I mean, just click it is just having early-morning I get aflutter and she does, but I hear this. It comes on is Kraken and I go there bring her some coffee. She mumbles up this if you give up what this would just blow your Bubba. She mumbles up. That's the Allman Brothers Lubbock 277 she's she's really good look but she's barely awake all the brothers love you okay baby goat cheese rocket. I would talk with their jillion Aaron is coming in from Dallas, Texas.

She has a new book out called bad ass advocate know is how to be a better what is fair to me will better serve you better. 70.com and this was all prompted by her family, receiving very very painful blues of of her sisters serious serious illness that eventually led to her death, but Aaron along the way so that she was going to provide as much care or are you sure that her sister got as much care she possibly could and she was not going to be at the mercy of the system to have the best quality tub. The best quality care that she could do as is caregiver is heard as her sister that just as her best friend and so she's were she learned some things. This is along the way and a lot of it comes with.

I'm sure there and a lot of tears that you learn these things not listed.

So you started, you started your list of things to talk about you. You build your team, you educate yourself you know what I look at the things that we can access just from our phones when I started out I was I was a caregiver and started being triggered 1986 okay so we have will you you and John were children, then the well we can around the box in our pockets with you want to know if Kevin Bacon was in that movie what you can. It takes two seconds.

I can tell you right now and if that's the kind of Monday knowledge that we have. There's a lot of very important knowledge.

This is right there, just Google it you know an instance, it is like you do need to be careful about the sources that might have but you don't want to go to some shaman on the phone the with it.

But at the same time get educate yourself that something that you did Aaron along your journey stoop to really push yourself to to to to learn more about this disease and it turns out you were learning about the same time her positions. He was learning to do a lot of this is fair statement for the London pressure there oncologist, she actually looked for cancer cell conditions were off and took great care of her.

But certainly that lung disease being so rare, it was new. A lot of people or not well known by you of it that makes it harder for now until I am anyone you I would say the 100 like you don't want to be rare when you have a duty now get the panic of position advantage that you have to do your best to really find an expert and we cannot really help with with that one aspect of the feeding tube, but there's many ways you can abdicate and you mentioned that as a member. I think this is something that people not realize you really know or maybe it could be a spouse or friend or something. You know that he sent better than the staff or the doctor so you may pick up on things that they don't because they don't know them personally, especially if the patient hospitalized right there not the same nurses all the time. Their shift from time to go to different ground so here where you can advocate even if you're an expert on the disease just by knowing the patient. Thank something is off and we did that with my sister where her behavior seemed goofy she will have her on that humor. I would have arboriculture goofy right that this wasn't how she liked so much apparent acting goofy. We realize something.now the staff might not realize that because she wasn't flying her words or saying anything so bizarre, but it just wasn't right and we realized it was her lung disease had basically caused her feel to the right and when you do that, it can cause you to act goofy or different.

I guess I should say check those three important for your family like normal. Yeah, yeah, you stop having a sense of humor. Then they would know that's a really is a 15 minute evaluation. They don't have time to get to know the lifetime the learning curve is just too steep and that's where we come in. This is personal and it's painful you can feel free to to swallow, decide to go on to something else. What were some moments where you just felt lost. You felt you had to come to go to someplace and just stand in the corner and just weep or or go down the hallway at the hospital so the what what would one of those lost places that you have will have the best and how to and how to doubt and informing your larger, where did you go with that. Well, one part of it right so ironically, critical sales trainer and we sell directly to a drug that we sell over-the-counter medication right so I know that respiratory illness is that not I had never heard of her lung. So in a way I felt dumb for lack of a better word that it mellowed out right because you feel like I should know everything and that's why conducting research and reaching out to people's jet photo. In addition to that I I'm not an expert on all these machines that surrounded her ship hooked up Kelly's machine and can I touch her. What is okay for me to do. My sister love to have a massage that okay and I realize that you can do it.

Don't be fearful to ask question because you don't know you're not expected to know that the position they may not bring it up or dress it because they're not thinking about it and they know, but it's okay. You don't now and I don't think when I was younger I would have asked a lot of questions that I did poorly because I would've been embarrassed or ashamed. Now I'm like, who cares who cares about.

I don't look so smart.

The question that I need to I can better advocate for both your hooked up to a monitor what it is numbers mean what it is numbers mean for healthy patient. One of those numbers mean for my specific patient my life and if you understand know and I can take notes. Everyone advocate our caregiver each have a notebook with you course will have those computers in our pocket right though you Or something you can use that as well but take note of those things have it written down somewhere you know you know what you're looking for and going back to the person that in the room and maybe the nurses in their room all the time right off. Then you go grab a nurse versus waiting for machine debate.

Or maybe the machine doesn't know you never know felt just the more you can educate yourself, the better off you'll be an advocate you said something there that really released me and I think I need to emphasize that we talk about therapy been very important for caregivers on the show an awful lot and we talk about all kinds of stuff you I go to therapy whenever I go to therapy. I am taking a notebook and it is one of the most overlooked tools that we really have interest to record things and just write it down and just to have that as a way around the boat water problems for caregivers just to just have have a notebook with us so we can record the data is such etc. otherwise yeah and also to go after something else you said about not feeling ashamed to ask questions and so forth.

I do think that we we undersell ourselves, we undersell ourselves as caregivers and then we try to somehow too much for where we skied before what we bring to the table. My father was called watching my mother go through a lot of stuff two years ago and dad is one of the smartest that I know he's got a doctorate degree in his field. He's been a pastor for 60 years just extraordinary individual In the Navy very very smart wise man and I watched him floundering tried to keep up with all the doctors and I said to him or sit.the debtor should look, I've got decades on you on this and I can't keep up with it's too much. That's not where my skill set is said you can go to medical school you would to divinity school do something fun and that it is a sit stay in your square is far as here's where you have tremendous authority is who you are as a pastor and this is his mom's husband is my father's you all over children. We have large families will said you don't have to practice medicine if you try to keep up with all the little nuances of it. It's going to wear you out.

Particularly, you know with you that the learning curve at 84's pretty hard and then Eddie was able to come settle down real is okay. I didn't have to learn everything.

Here's what you here's what you can learn and here's a good path for you in it because it does. It comes at us so fast.

Aaron and of I'm kind of a repository of Gracie's chart. The only person on the planet really knows the whole chart because are so many people treated her in and of document. It is much as I possibly can with it but it still comes at you too fast and Gracie knows her own shortcomings. She said she's pretty engaged in all these things and she does her history, but it does come at you fast and where were those arts you got you got educate yourself. You got to build a team, and then you have the situations where you would learn these things.

What about when you had what what else can go get a perfect so what about what one whole chapter on strong question where my training as a part of typical sales rep and now the trainer I know this question so I don't give you a question that might help situation of different rights.

I can't anticipate all the question that I can teach you doing a book how I teach my rat question to position in our question you could ask anybody thought the great physician, but how to form the question how to work together. Did you give an example of this question because of the clock your certificate exam to ask questions because you don't what God would we go to do. That's not the way to ask a question I would assume now right but you do want to have what you did, which was good at it open-ended. What you probably don't realize you do not which is the light how landfill question we close any questions which are due in our day there. Yes no answer, and sometimes you'll have a finish that will just answer what you and not very limiting information that you'll get if you ask open ended specific to what you need to know that you can get the best information possible and I also talk about clarifying questions and confirming question. So, to clarify what back to feeling stupid. Don't be afraid to clarify it okay if they use the term you are wet or medication. They speak of and you know clothes are talking about. Slow down here got in clarify that I'm not really sure what you're talking about.

Can you tell me more about that and that is the best way to take her time asking questions and I flag dedicated a whole chapter to it. The other aspect peeking out. I can even one that and I'll tell you that you have to ask the patient permission and efficient. I would say that the start start recording conversations that they're okay with it because everyone on their smart phone has a recording device right so if the condition it come to with it and of course the patient comes with it. Say it recorded conversations we can go back to it later at night you to entrap them or a lawsuit or anything like that. Just so you can go back as a caregiver support team and say this is what he said I totally missed that. Or, you know, I thought he said that I will be listening to that you can share people that are present there is lots. One. Listen to what we're up against a break so I gotta go back and we could do some more. This will we. We like to have a lot of fun educating and training. John handles entertaining part Very jillion bad ass applicant.com. The book is better. Seven.

Just like it sounds something for you, please listen to it over and over to check out a website. Thank you for being a part of the show, Rosenberger hope, think about all the legal documents you need power of attorney will, living wills, and so many more then about such things as disputes about medical bills. What if instead of showing out hefty fees for a few days of legal help paid a monthly membership and got a law firm for life. Well, we are taking legal representation and making some revisions in the form of accessible, affordable, full-service coverage.

Finally, you can live life know you have a lawyer in your back pocket who at the same time is empty. It's called legal shield and its practical, affordable, and must for the family caregiver visit caregiver legal.com that's caregiver legal.com. Isn't it about time someone started advocating for you www.dotcaregiver.com on independent associate. Have you ever struggled to trust God when lousy things happen to you. I'm Gracie Rosenberger in 1983 I experienced a horrific car accident, leading to 80 surgeries in both legs.

AP take it. I questioned why God allowed something so brutal to happen to me. But over time I questions changed and I discovered courage to trust God that understanding along with an appreciation for quality prosthetic limbs led me to establish standing with help more than a dozen years we been working with the government of Ghana and West Africa, equipping and training local workers to build and maintain quality prosthetic limbs for their own people on a regular basis. We purchased ship equipment and supplies and with the help of inmates in a Tennessee prison.

We also recycle parts from donated limbs. All of this is to point others to Christ. The source of my help and strength, please visit standing with help.com to learn more and participate in lifting others that standing without.com. I'm Gracie. I am standing with help and this is just this is the we are glad that you're part of. If you would like to be a part of the show, you could always call you but at the same time we have this available for you and hope for the caregiver.home owner podcast page hope for the cure conduct from the memory: Belize 877-645-6755 877-645-6755 and we would go to this form that we do the broadcast show every Saturday morning at 8 AM Eastern and run about 200 stations and then we do the part you're still in Sonny's beloved little public job should have 1/3, you don't do another part midweek podcasts will to help you is a caregiver to stay strong and healthy way to cure someone who is not by way imagine being a parent at the end of of your rope caring for special-needs child and if you feel so alone you feel so lonely and so discouraged and nobody's reaching out to you.

What would happen if every day once a week, three times a week. Whatever. But on a regular schedule. Somebody called just to check on you. What difference do you think that would make imagine if you're going to the grocery store and do not rush into the house because your panic that something could happen what you're going to your loved one and you can just look at your phone and look at them right there and make sure they're okay in their safe of what about if you were you able to check on whether an assisted living facility that you can't get into because the coronavirus would that be worth something to you. What about a system like that had a million-dollar guarantee for your privacy that you would be safe as you had such a system will that's what you could have white male when you go to companion 24 seven.com companion 24 seven.com companion 247.com and then you can go and check out what's going on with this and use the promo code caregiver to get a special diskette of try this in my house with Gracie and fix you sitting up some things last week that extraordinary tools it helps for her to be able to better be protected if I'm not here at the house where she's got certain things going on others there since you this entire it's a partnership to do with Alexa and Amazon to send you three different echo devices you could put in different rooms what is earmarked for the room and guess what job as well as your bike?

Speaking to yes yes were here right now and so you you talking about Alexa that she she's upstairs she's upstairs space upstairs.

I keep Alexa sequestered when the mother here, but no, it's what we we have for that. We Artie had Alexa device so the weather working with this with this if Yorty have what you don't have to change it out.

You'll have to try to reprogram everything there is posted and you send up his computer to use a computer, such such edits. It's a private network that also is not dependent upon the power so the power goes out you still have your own secure network cellular with this so that you could still have all the monitoring the safety for your love when you could check on your loved one at any given point in it's all secured.

That's what you have at companion 24 7.call Mitch.

The word caregiver and you get a special discount on it companion 24 seven.com a while where we do this. This is a service that helps offload one of the two of the three is that every caregiver struggles with. We talked about the slope of the show we lose we lose our independence we become isolated will guess what you have independence that you can read Gmail because you can monitor from a distant, you can go and run your errands you can do certain things and you know your loved one is safe. It doesn't replace the human touch. It never does nothing will replace the human being, but we can week we offload some of that stress on this on the technology and then that isolation I was reading about a lady down and Florida who drilled and killed her by drilling her nine-year-old son with autism who was nonverbal. I believe a matching didn't seem to call but just call and check on her and you can with this system you can program the part was visiting Angels on this and you could program a a call from a real person every single day. If you want, sometimes twice a day if you want just call and check on are you okay are you feeling you know that's one of the things we did we show we do on the show when people call in for all her colors is that we asked him how are you feeling the city but he ask you how you're feeling here in your life do you have that the how important is that to you to have that or for somebody you know if you don't know how to help somebody that's a caregiver and you see them spiraling out of control of submitters. This is one of the ways we can do this to make sure that were connected. The human touch. The first thing that Milton and Milton's book perishables. They said the first thing the gods says that.that was not good was that man was alone and that was before the fall, and so being alone. It is what cripple somebody caregiver's caregiving is hard enough doing it by yourself. Are you kidding me and I see in this isolation somebody caregiver spell and spare been there done that people didn't know what to say to me, and now we do that, given the vocabulary and in their somebody others are doing the same thing and and and this is how we do. I am just grateful for you. Thank you for being a part of the show John, thank you. Hopefully caregiver.com oh by the way our prosthetic limb outreach. We need prosthetic limbs Gracie started this when she lost her legs go to steady with hope and you can see how you could recycle prosthetic limb. They go to a local prison in Tennessee where inmates can volunteer to disassemble the leg so we could recycle from a course of one of their faith-based programs. We need legs because some of the West Africa for prosthetic limit reach study without.com you can see more about that later. Thank you for joining us today will see you next


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