Why She Chose to Celebrate Her Pregnancy With a 50% Chance of Survival

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And we continue with our American Stories. Up next, you'll hear a story from Lex Ginger, a woman who has a remarkable journey and is quite possibly the only person to be sworn in as an attorney in the maternity ward of a hospital. Here's Lex. I'd always known that I could potentially have fertility issues, so I have something called polycystic ovary syndrome where you have like little cysts all over your ovaries and it can make getting pregnant kind of difficult. So I'd always been told that when I was starting at 18 and since then I've even discovered I have a blood clotting disorder called factor five, which makes miscarriages very likely. It makes maintaining a pregnancy very difficult, higher chance of stillbirth, etc.

Very dangerous. I had told my husband early on while we were dating that I wasn't sure if I could get pregnant and everything, and he said that didn't bother him whatsoever. We were in love, etc. We then got married six months later, so we celebrated our one year anniversary like a month before we got married. I think people probably from undergrad thought I'd lost my mind for a second, but once you meet Patrick it all makes sense.

He's literally such an amazing person and it was just when you know, you know type of thing. And then in October 2018, we decided that we would try this one month in October, and if it didn't happen we were going to hold off until summer 2019 because I had to take the bar, which is a test that attorneys have to take to practice in their state and become licensed. So we tried for it and then two weeks, three weeks later I thought well this is probably not going to be super accurate because of the PCOS, but hey might as well. I peed on the stick and I put it down in my bathroom and then I went about my day. I didn't even look at it.

I ran errands around town. I didn't even think I was pregnant. I'd even, it wasn't even a thought in my mind that I could even possibly or potentially be pregnant.

So I literally didn't look at, I didn't look at the stick and then in the afternoon it just like occurred to me I'm like oh yeah I did that. I probably should look at it you know just to see and it said pregnant and I was just over the moon. First thing is I did is I called my doctor and they said okay we want you to come in today, Friday and do a blood work test and then come back in Monday and I believe Wednesday and then we're going to see the levels of your blood work.

Private women have something called hCG. It's the pregnancy hormone and you should see a double every 48 hours. They told me because you know it was so early on they felt like it might be a chemical pregnancy and they didn't want me to get my hopes up. So I went and did the test and it was 200 and then I went back again and it more than doubled it was 800 and I remembered like the third time it was like 1400 and I remember asking the woman on the phone I'm like is this okay is this is this normal I'm like a little nervous and she said oh no this is this is great this is like a really healthy pregnancy it's not a chemical pregnancy whatsoever so we're gonna set you in for your first you know ultrasound appointment at six weeks and we went to it and on the screen we saw one yolk sac and we saw you know what appeared to be just one baby on the screen as we thought and expected and I remember the doctor saying wow this is just the strongest fetal heartbeat. I almost want to ask the other doctors to come in and hear it because it's so amazing how strong it is. So we look at the screen everything's looking healthy everything's looking great strong heartbeat we're excited. I'd been feeling really great at this point I thought oh I got away with not getting morning sickness it runs in my family. I woke up I remember it was dead on the money seven weeks I could hardly open my eyes like they felt like they were shut for a couple of days I wasn't able to even keep down water. So I called my doctor's office and they told me hey we can give you a prescription for the medication but we really want to see you at least to pick up the prescription maybe just you know have a look over you but it should be no big deal we have an appointment in an hour. I told my husband Pat you know I have this nausea check-in the doctor's office was across the street from her house I said please he's an attorney he had court every morning I said please do not come to this appointment I don't want you missing work for it it's just a prescription pickup. So I go to the doctor's office with big sunglasses on and a solo cup full of ginger ale and the doctor saw me they're like you know what you look you look really bad let me just give you a quick ultrasound and make sure that everything's okay with the baby because I know you've been throwing up so much and you look dehydrated you might need an IV etc and she starts eating ultrasound and I feel like at the time it just was taking a really long time and she just seemed like she was concentrating so hard on the screen and I started kind of getting a little nervous and the doctor after minutes minutes and minutes looks at me and says do you know you're having twins like in shock and I look at her and I just say oh no I'm not and she says yes you are and I said no I'm not and she said yes you are and I said there is no way I was just here last week and there was one and and they don't they don't multiply like that what are you talking about and she's still like looking and looking and looking and looking at the screen and she looks just so concerned and the way she was talking to me was just not in like a happy positive like oh my gosh you're having twins it was like you're having twins and like and I said are they conjoined and she looks at me and says they might be let me explain twins normally each have their own yolk sac and there's just one here but there's clearly two heartbeats so they're either conjoined or there's something called monoamniotic monochorionic twins that are not conjoined you know I obviously start asking her questions because I'm thinking okay there's a chance that they're not conjoined mono mono that doesn't seem so bad like I don't even know what that really means and she tells me well monoamniotic monochorionic means that your twins have one placenta and they're in the same sac together and I looked at her and I'm like okay you know still not really understanding I said okay well how many times do you see this a year you know what's what's the prognosis so to speak and she looks at me and says I've never seen this in my entire career and then she kind of walked away to this cabinet and pulls out a medical textbook flicks it open I joke and say I feel like she blew dust off of it that's what it felt like but she flips to the back and says you know there's three sentences on monoamniotic monochorionic twins you are one in ten thousand to one in sixty thousand pregnancies a year in the united states they have a 50 chance of surviving the first trimester if your pregnancy makes it past 12 weeks in the second trimester you have about a 30 chance of miscarriage whereas the average chance of miscarriage is about one to five percent so it's very dangerous and really the likelihood that you're going to make it past 12 weeks is pretty slim meanwhile my husband's not there this is a lot of information to take in I start crying and I'm just bawling my eyes out I had left my phone in the car and you know my haze of feeling so sick and I was just practically gonna have a panic attack to be honest with you and the doctor just starts explaining that they're so dangerous because twins are usually in separate sex and that's what really keeps them safe it keeps them from compressing it keeps their umbilical cords from tangling it keeps them from doing all kinds of things like twins aren't actually supposed to touch skin to skin in the womb they're not supposed to be able to hold hands or hug or anything because all of those things are just so dangerous just telling me all this information I'm just like mind blown it's a lot for me to take and I remember my doctor who's a very stoic woman says can I give you a hug and I was like oh no mentally because I'm like she's not a hugger type and if she's hugging me this isn't good so she's she starts hugging me I'm crying and she tells me that I need to see something called a maternal fetal medicine specialist but they won't see anyone until 14 weeks and that they're not going to be able to know whether they're conjoined or mano mano really until then my doctor said that her office was going to start doing weekly demise checks every single week until 14 weeks to see if the twins were still alive or not up until I was at 14 weeks I felt floored and you've been listening to Lex ginger's story of her pregnancy and it's one of the greatest moments in a couple's life when they find out that there's a baby and it's also one of the most worrisome moments of a life will the baby be healthy will the baby survive we've done a lot of segments on miscarriage here on this show because it's real and the grief is profound and Ronald Reagan signed into law the infant loss bill in 1984 and he called it one of his most important just to give recognition to what happens to women and their husbands when a baby is lost in the womb when we come back more of the story of Lex ginger's story what happens next here on Our American Stories this February Xfinity Flex is unlocking premium entertainment for you to try every single week no strings attached celebrate during black history month with shows like unsung the decades snuggle up during valentine's day with a lifetime movie club pick like Harry and megan of royal romance or crank up the action with godfather of harlem from mgm plus get down and funky with the classic soul playlist from iheartradio easily discover new free content each week across the best streaming app say free this week into your xfinity voice remote there's a recipe for getting your car running just right and whatever you're cooking up in the garage you'll find what you need at ebaymotors.com they have over 122 million car parts and accessories in stock all at the right prices and that can help you turn your ride into something really tasty the parts you need are just a click away at ebaymotors.com let's ride draft king sportsbook an official sports betting partner of super bowl 57 has all the super bowl action new customers can bet just five dollars and get 200 in bonus bets instantly plus all customers can get in on the super bowl 57 excitement with draft king's happy hour super boosts download the draft king sportsbook app and use promo code timer new customers can bet five dollars on super bowl 57 and get 200 in bonus bets instantly that's code timer only at draft king sportsbook an official sports betting partner of super bowl 57 21 and over in most eligible states but age varies by jurisdiction void in ontario eligibility and deposit restrictions apply see draftkings.com sportsbook for details and state-specific responsible gambling resources gambling problem call 1-800-GAMBLER in new york call 8778 hope and wire text hope in y 467369 bonus issued as bonus bets opt-in required for odds boost bet type and amount limits vary eligibility and terms at sportsbook.draftkings.com football terms and we continue with lex ginger's story and we're about to hear what happens next after hearing well just the worst possible news a woman could hear and worse her husband who wanted to be there he wasn't there and she didn't even have a phone nearby let's pick up where we last left off i get my phone that i left in my car and i call my husband bawling my eyes out he's probably confused and he immediately takes off from work meets me at the house i'm just curled up in bed crying and he's you know holding me and just tell me everything's gonna be all right and it was just a lot to take because the thing about mono mono twins too is that if they were to demise which is the medical term for you know twin death it's any moment because the tangling the compressing it can be it's minute by minute it's not something that you can predict and it's not something you're going to feel and it was just a feeling of overwhelming sadness and i just felt like there's no way i'm going to even make it past 12 weeks how sad is this and i'm just crying and pat was like you know she says it's 50 like you're thinking 50 negative but there's 50 in cases that can make it and like why not us i ended up making it to 14 weeks at this point we had already had received the results for the gender of the twins another interesting thing about mono mono twins is that 75 of the pregnancies are girls and mono mono twins are always identical they don't know why mono mono twins are overwhelmingly girls but the theory is that the female fetuses are stronger and can withstand the tangling and the compressing better than boy fetuses so to speak but i was just i was so sad and i was like it'll just make it tougher if i know the gender and i miscarry and i'm just gonna be so sad and at this point i remember it was my sadness was so bad that my husband would leave for work and i would be in bed and he'd get back home and i would be in the same spot i hadn't moved and it also doesn't help if you're so morning sick meanwhile all of this going on i'm studying for the bar to become a licensed attorney which is one of the most stressful times in a young attorney's life just in general so my husband was like we you really need to start seeing a therapist that potentially like a trauma therapist that can walk you through this and help you reframe things and so that's what i did really put me in a better mind frame i started to delve into the bar study because i felt like it was a good distraction and it helped me get to those like appointments to appointments i almost felt like i lived for those weekly appointment checks and it actually helped sitting for the bar i don't know how many people say like sitting for a bar is a treat but for me it was a great distraction so we made it to 14 weeks which was going to be the mfm appointment so since we made it to 14 weeks we decided like let's do the gender like we made it this far and i remember knowing i'm like they're going to be girls because they're always girls and we did just a little dinner with with family and we did the one two three cut open that cupcake and dang it if that icing wasn't blue we were over the moon we were excited because honestly we didn't care if they're boys or girls we just went on healthy babies and i remember when we got home my husband was like okay well we only have two boy names ever on our list before we ever even had kids we just had tons of girl names and then we just had two boy names maxwell and miles and he goes well that makes it easy we got maxwell miles and i looked at my oh we can't name them like that's bad luck like like what if they don't make it and and i can't i don't know if i can handle like them having names my husband looks at me he's like max and miles are going to make it so i don't know what you're talking about so positive all the time and it was extremely helpful because i think if you have two people that believe the world is ending it would be a very tough marriage but it's a good balance and he wanted us to have a baby shower and i said oh no no we can't have a baby shower we're gonna jinx things what if we like lose them right before we're gonna have to call everyone and i remember i talked to my therapist and i remember telling her is what if they don't make it and she goes and what if they don't and i go well then i'm gonna have to call everyone and tell them that they didn't make it and she goes well can you assign someone to do that for you so you don't have to do that emotional baggage and i said well of course i can and she goes okay well then why else don't you want a baby shower and i remember saying i'm like i don't know it will kind of be embarrassing if maybe we have a baby shower and then i lose them next day and she goes is that really gonna be you know embarrassing and i said well it's not gonna be embarrassing it's just gonna be very sad and she told me she's like well is it gonna be more or less sad just because you had a party for them and i said well no not for me it'll be sad either way it'll be devastating either way and she says okay well then you take that what you will we go to my maternal fetal medicine specialist and she kind of gives me the news i'd already looked up some things on google which i do not recommend if you have a high-risk pregnancy but my mfm told me the boys are monomniotic monochorionic twins they have separate blood flows and they are not conjoined but they're definitely monomniotic monochorionics this is a very potentially dangerous pregnancy for the twins and my mfm kind of gave me the bomb that i knew was coming which was at somewhere between 24 and 26 weeks you'll have to be admitted into the hospital and you'll have to be monitored on a schedule it's going to be grueling and you're going to have to have a plan c section between 32 and 34 weeks and she said our hospital that our group is associated with we don't have 24 hour ob-gyn's on staff and she said you're going to have to go to a research hospital you're also going to want to be at the research hospital because they have a level four NICU so if your twins make it you want to have the best NICU care possible and our team cannot provide that for you that's a lot of information to take obviously it kind of made it more scary to hear that like the big labor hospital in town can't take you because you're too high risk so at 14 weeks i get moved over to a completely new group and i find some just wonderful doctors but i remember my very first point with an ob-gyn was at 18 weeks and i remember i went to this 18-week appointment and this doctor is flipping through my file and she kind of i remember just kind of says it not in a kind way um very blunt said you know one of your twins has a marker for down syndrome and i was like no i've never been told that and she goes yep they have a little spot in their brain and kind of just keeps flipping through the file and doesn't pause to like let me process information i said okay and then she keeps flipping she goes oh by the way we notice here that one of the twins has one hole in his heart and the other one has two holes in the art so you're gonna have to start seeing a fetal cardiologist and then just kind of keeps moving on she didn't have the best bedside manner is what i'm trying to say she kept dropping bombs and just would keep moving on the conversation i had a lot going on obviously it's a lot of really tough medical information to take but i kept just trying to stay on the path of positivity at the time i still was studying for the bar and i remember when i was five months pregnant it was time for me to go take the bar this was maybe a week before my planned baby shower at 22 weeks you have to do baby shower early because you know you're gonna go to the hospital and i remember i woke up that morning and i just cried and i said patrick i cannot take the bar i you know i have been so nauseous i've hardly been able to study to the amount i really would like i can't it's a waste of my time to go and you know i'm i'm feeling nauseous i think i'm gonna stay home and he tells me he's like lex what do you got to lose he's like if anything you're you'll just just sit there he goes you don't even have to fill out a bubble and i said you know what babe you're right and in in florida the bar is a two-day event and it's three hours in the morning three hours in the afternoon so it's a total of 12 hours of tests taken whoo and i remember after the second day i got in the car and my husband was so but he's like clapping he's like you did it you did it and i was just bawling my eyes out and i said pat there's no way i passed he goes i'm gonna take you to hibachi because he knows i love hibachi especially when i was pregnant i started crying at the hibachi place i mean i was a real mess i don't know if it was the test the hormones or just feeling you know doubt about everything but i was proud of myself that i at least had sat there and had taken it so the next week i had a bunch of friends fly in from all over our baby shower was probably 150 people it was quite the quite the event and it was just like a very beautiful day having everyone together and celebrating the babies and everyone was just so happy and i'm very happy looking back that i had a baby shower and you've been listening to lex ginger's story and what a story it is indeed the news just kept getting worse for her learning that max and miles one of them had a hole in the heart one had two and one of them had a marker for down syndrome and during that whole time she also had to sit for the bar exam when we come back more of lex ginger's story here on our american stories this february xfinity flex is unlocking premium entertainment for you to try every single week no strings attached celebrate during black history month with shows like unsung the decades snuggle up during valentine's day with a lifetime movie club pic like harry and megan a royal romance or crank up the action with godfather of harlem from mgm plus get down and funky with the classic soul playlist from i heart radio easily discover new free content each week across the best streaming app say free this week into your xfinity voice remote there's a recipe for getting your car running just right and whatever you're cooking up in the garage you'll find what you need at ebaymotors.com they have over 122 million car parts and accessories in stock all at the right prices and that can help you turn your ride into something really tasty the parts you need are just a click away at ebaymotors.com let's ride draft king sportsbook an official sports betting partner of super bowl 57 has all the super bowl action new customers can bet just five dollars and get 200 in bonus bets instantly plus all customers can get in on the super bowl 57 excitement with draft king's happy hour super boosts download the draft king sportsbook app and use promo code timer new customers can bet five dollars on super bowl 57 and get 200 in bonus bets instantly that's code timer only at draft king's sportsbook an official sports betting partner of super bowl 57 21 and over in most eligible states but age varies by jurisdiction void in ontario eligibility and deposit restrictions apply see draftkings.com sportsbook for details and state-specific responsible gambling resources gambling problem call 1-800-GAMBLER in new york call 8778-hope-and-wire text hope-and-y 467-369 bonus issued as bonus bets opt-in required for odds boost bet type and amount limits vary eligibility and terms at sportsbook.draftkings.com slash football terms and we continue with our american stories and with flex ginger sharing her story of why she decided to celebrate a twin pregnancy that only had a 50 chance of making it back to Lex with the rest of her story in the next week I was going to be inpatient in the hospital I remember people thought I was crazy so I pull up with like a palette of objects I had this little plastic drawer set from target I had a little laundry basket I had brought my own mattress topper topper I had brought my own wi-fi diverter I'd even brought a little rug I brought a shower curtain I had brought everything but you know you think that's crazy but you're you're also living there for potentially two months you might as well make it a little comfortable and so I did I was 25 weeks is when I decided to become impatient and around that time the result for the bar came out I had no sights that I had passed whatsoever and then I look at my number and it says pass pass pass your licensed attorney I I got so excited that my heart monitors went off I had nurses and doctors run into my room like are you okay is everything okay but and I was like I'm an attorney and everyone starts like clapping I told everyone about these results that were coming out and I remember thinking well oh shoot to actually become a licensed attorney after passing you have to still be sworn into the bar and usually these swearing ceremonies you know they don't take place in hospitals right and I couldn't leave the premises my husband at the time was working at the public defender's office and his boss julianne hole is someone who can swear people in she's the public defender of our county and he asked her if you know she could come down to the hospital and swear me in and she agreed and that was just so sweet and I remember the day came it was maybe like a week later and I got all gussied up and my husband comes in my room and he was like hey why don't we go down to the conference room there's there's gonna be more space there and I was like but I but I cleaned my room I remember saying I'm like but I cleaned my room and he's like no no you definitely want to come in the conference room like she needs lots of space to do the swearing ceremony and I was like okay that's fine and I remember kind of like waddling in these little heels down down the hallway and I opened the conference room and I didn't hear surprise I heard surprise because no one wanted to scare a pregnant lady but in the room it was my nursing staff some doctors friends and family and they'd all come in to see me get sworn in which is just oh my god which is so special and I got sworn in in the maternity ward I have no idea if anyone else ever has been um but it felt very special and unique and it was just a very very cool moment there is only really four study on mono mono twins it's very difficult for them to do big solid studies and the end of every single one of the study is the only thing you can do is monitor we really have no further information more research needed which is not something you want to read when it comes to your high-risk pregnancy because the answer is there's no real you know set way to deal with it medically they said that they considered me to be their most high-risk patient you know that they had at the hospital at the time so they put me in the room right next to the or and mfm I ended up having quite lovely chats with him he was one of the head mfms and he said he said you know we have a lot of cases on this floor but the only one that keeps me up at night is yours and I was like I don't know and we just kind of chuckled I have that kind of sense of humor I'm like I know I'm not getting any sleep either and he would come and make sure that he was at all of my ultrasound appointments with me as well because I think he wanted to see with his own eyes how they were progressing and I appreciate that I also got very close with a resident who was a resident for an ob-gyn dr dean and I remember she had the coolest black nail polish so I made it to my 32 week I had been able to for my c-section to pick out my entire team and I remember I asked also the resident dr dean can you be there and she said I can't because I'm a night shift doctor and your c-section schedule for the morning you have to pick morning doctors and I said okay so you know the day comes I'm 32 weeks I made it to my day and I remember not even being nervous because I just felt like an overwhelming sense of calm and success that I even had made it to 32 weeks we walked to the next door because they had literally put me next to the OR and they tell you like you're gonna feel a little nauseous potentially you might feel a little shaky they kind of start prepping me my husband's still not in the room they don't they don't grab the partner at my hospital until it's like kind of like game time game time so there's a lot to do before then but that's kind of scary because you know you don't have a family member in there with you I remember feeling like all of a sudden this wave of nausea just hits me really bad and I remember just thinking like I feel so sick I feel so sick I feel so sick I was like I think I'm gonna throw and I look over and someone grabs my hand and it's a hand with black nail polish and I look up and it's dr dean and she goes Lex I'm right here and I'm like dr dean how are you here and she was like I got special permission by the hospital to be present at your c-section I won't be you know doing anything I just got off night shift but they're allowing me to be here with you like a support person it was such as like this beautiful moment I remember thinking I'm like dr dean am I dying because I feel really sick and she goes you are the most alive person in this room Lex like your stats are amazing she was reading them out to me and then at a certain point she says hey let me go get your husband for you it was time they brought in pat and they told me they're like okay these are gonna be 32 week babies so you know they might come out and they might not be screaming but it's game time they pulled out the twins back to back and if they were not screaming they were screaming cute as can be healthy boys they were born with an abgar score of nine out of ten which is better for even just like a regular full-term baby great color great size for their age you know good lungs everything and so we were actually able in the c-section room to take you know photos with them my husband was able to cut their cord in the room there was probably because each baby had two NICU teams my husband says there's probably 25 people in the operating room who said it was wild like it was crazy miles was born at a weight of three pounds 14 ounces and max was three pounds 13 ounces and they pulled them out at random you know they're in the same sack together and the NICU team brought them down and they did really great in the NICU max did have two holes in his heart miles had one but they were pretty small one of the first things they did was do the cardiology scan with their cardiologist who had seen me and he said you know i have a feeling these are going to close by one years old and gosh darn they did at one years old they got confirmed that they closed and that we would never have to for this see a cardiologist for them again in their life so that was like a real blessing they were you know just healthy boys and at that point it no longer mattered that they were in a mono mono twin pregnancy they were only in the NICU for 30 days which is pretty pretty great and we brought them home and it's it's been wonderful since then i think a big part of me celebrating the boys even though we got this scary high-risk diagnosis is that you know i did have and i still do have these issues with fertility the fact that i got pregnant and was able to hold a pregnancy let alone a high-risk one is truly amazing there was a doctor at around 10 weeks that you know we were talking about everything i hadn't seen her before and she was the only doctor at that point that had seen a mono mono pregnancy but had seen it end in a stillbirth and she looked at me she goes well you know you can just get a termination and i look at her and i was like i mean we do know that but we just kind of we want to we want to try and she was like kind of give me a look like okay like kind of like you know it's going to be tough but you know i let her know no you know we are continuing on onward onward and upward hopefully but um it was really hard and i don't want to you know downplay that it was very depressing when i say i refuse to set up a nursery i refuse i said i cannot come home if they don't make it and see a whole setup crib and i can't do it i was like that's the one thing pat i can't do so we had a whole room filled with boxes and once the boys were born that's when i was like okay we made it here we are um and i called my family and you know i was recovering from a c-section and like 10 of my family members came over and set up the whole nursery for us while the boys were in the NICU we have two healthy boys now they're very different max is more stoic he's the most adventurous like he has no fears which is always a little scary as a parent right he just goes headfirst into anything he's doing and he doesn't think twice you then get his brother miles who is a little bit of you know he's a little bit more i don't want to say a worry wort but he definitely thinks twice before everything like he's just much more like aware of the potential dangers around him so to speak even for a three-year-old he's always reeling back his brother max max is you know about to jump off the top of the playground he'll be the one holding the shirt you know so even though they're identical twins they're very different very different they just started baseball and basketball which is so cute at the age of three because you know they don't know what they're doing but it's really really sweet and they seem to really love getting outside and doing that and they're just you know typical fun little boys and just in real sweeties we feel like very blessed very blessed and a terrific job on the production by madison derricott and a special thanks to lex ginger for sharing her story her husband patrick and her two beautiful boys miles and max the story about so many things about faith about optimism about love that swearing ceremony in that conference center just spectacular he almost wanted to wish in some way you could have been there for something so special and the way the medical community in this country works how they come to the aid of folks it's a beautiful precious system we have filled with people like that lady with the black nail polish dr dean a beautiful story about love birth and life lex ginger's story here on our american stories what do you want i mean really want this valentine's day chocolate candy flowers or perhaps you might indulge yourself this valentine's day with hud app the empowered approach to commitment-free dating hud app specialized features are here to help you find someone who isn't necessarily in it for the long run but is there for you when it really matters like when your bed is a bit cold on cubit's day so skip the wilting bouquets and chalky candies settle in snuggle up and give yourself the gift of a great night when you search hud app on your app store that's h-u-d app this 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